Hi all,
I've finally posted the summary results for the second version of the Survey on Asperger's Syndrome and Sexuality. You can find the link on the first page of my site, www.tantra-intimacy-aspergers.com.
I haven't written a report or summary yet, but thought I'd at least share the summary.
Would like to hear people's thoughts and reactions too.
Thanks!
I've finally posted the summary results for the second version of the Survey on Asperger's Syndrome and Sexuality. You can find the link on the first page of my site, www.tantra-intimacy-aspergers.com.
I haven't written a report or summary yet, but thought I'd at least share the summary.
Would like to hear people's thoughts and reactions too.
Thanks!
posted by:
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Re: Summary Results of Asperger's and Sexuality Survey
Thu, January 17, 2008 - 8:20 AMOk, time to ask.
"I withhold sex when I'm mad with my partner"
Even assuming "mad" here is slang for "angry", the way this is phrased suggests that most people do or should be having sex when they're angry and I can't even picture that. Are there people who routinely make a point of having sex with people they are angry with? Does this really qualify as "withholding" rather than "I don't have sex when I don't want to"?
I have plenty of other minor and moderate criticisms of the survey, and I think some questions are just simply broken. But this one completely threw me. -
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Re: Summary Results of Asperger's and Sexuality Survey
Thu, January 17, 2008 - 10:10 AMhahha, team noir: just fyi, I dont make a point of making love to people when I am angry.. ;-))
I share with you that on some of the questions I would not know what to answer.. (there even was one I simply didnt understand.. oops)
if you see the statistics on the side, they tell you how many people answered the question etc. Most surveys dont let you see this info,- ditsorting the appearance of the results. I like we can see the percentages individually for each question, which makes it s serious attempt to be accurate.
One of my favorit sayings is: "46,3% of all statistics have been made up on the spot.." ;-) -
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Re: Summary Results of Asperger's and Sexuality Survey
Thu, January 17, 2008 - 1:07 PMYeah, it's nice to see this sort of thing being done and good to know it's an honest effort...
Some of the presentation of those summary numbers ought to be updated though because with the current presentation they look a little bit misleading, for example, when it asks "when were you diagnosed?"
answered question 28
skipped question 57
Well, that particular question only gets answered by folks who've been diagnosed, and in a previous question, it shows that a large number of people taking the survey are self-identified or neurotypical. So here we see 28 people out of the total 85 answered, but it's not showing us how many of those 57 didn't answer because it wasn't applicable, vs. how many skipped for some other reason. Would be nice to see
answered 28
skipped 3
not applicable 54
Would make it easier when viewing the results to see that "oh this is only applicable to 31 people" vs. "gee, there's a lot of folks who didn't want to answer that question" -- those two impressions from seeing those results would mean very different things and possibly lead to some folks misinforming others on the basis of simple confusion about the presentation of the results. -
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Re: Summary Results of Asperger's and Sexuality Survey
Thu, January 17, 2008 - 1:28 PMSo as I read further down I then notice:
>>> 14. How do you describe your current sexual orientation(s) and preferences? Please check all that apply.
Which would be a great place to divide the results up between NT's and aspies, because it's not asked for aspies specifically to answer it and that means those numbers are polluted in a way that makes them not really tell me anything I'd like to know. So ... 75% of the people taking the survey are heterosexual... great... but I can't narrow that down to just the aspies vs. just the NT's to see if there's a significant trend for aspies to be more or less hetero than NTs, which is what would really interest me with that question. -
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Re: Summary Results of Asperger's and Sexuality Survey
Wed, January 23, 2008 - 4:14 PMThanks for comments. Obviously, the survey is not perfect and has some flaws. I'll be doing some fine tuning on the analyses, breaking down the numbers, etc. as I write my report. Will share more of these things later, including the breakdowns you mention here.
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Re: Summary Results of Asperger's and Sexuality Survey
Wed, January 23, 2008 - 4:53 PMThanks Hunakai. Glad to see it being done. :)
And of course, all my comments are meant in the spirit of "constructive criticism". Feel free to contact me directly if you're confused (or offended) by any of my comments. :) -
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Re: Summary Results of Asperger's and Sexuality Survey
Wed, February 27, 2008 - 3:58 AM"Are there people who routinely make a point of having sex with people they are angry with? "
*shyly raises hand and looks demure*
i'm not saying it's healthy, i'm just saying ... well have you ever tryed it?
i meen it makes it hard to make love, but as far as just fucking gose, it can be a real experience. -
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Re: Summary Results of Asperger's and Sexuality Survey
Wed, February 27, 2008 - 10:05 AM"... well have you ever tryed it? "
No, I haven't. I haven't figured out how.
In the first place, I'm not often angry. And when I am, or my partner is, there doesn't seem to be much approach to consent. I don't have any models for it. And I haven't managed to imagine it, aside from a TPE sort of context.
I have played angry, on occasion. Sometimes it was cathartic. Sometimes it was just a mess. -
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Re: Summary Results of Asperger's and Sexuality Survey
Fri, March 28, 2008 - 3:58 AMdenise : wow! danm! well said! :)
you are fucking awsome by the way.
i thot it nesisary to tell you on the off chance you wern't aware or it, you are awsome. and if i knew you i would probuly have a crush on you right now, after reading that.
team: ya it's sort of somthing that just sort of has to hapen , i can't think of how to describe the times that i did it, it was intens thow, the hole transmutation of emothinns thing, ther was definitly an element of catharsis, lol, actualy it is realyy catharsis if you think about it, becals the traditional grak meening of the wqord catharsis was the part at the end of the play wer the protagonist wraps up all of the lessons he has learned , resolves the emotions that wer troubling him and then dies, and the french refer poeticaly to an orgasm as "the tiny death" poteet mohn (finetic speling) lol.
have you ever goten to that point in the argument wer you are bothe still feeling your anger , but you have already resolved the issue and now all that is left is for you bothe to cool down and get out of "angry mode" ? becals i think thats always when it hapend for me. it's like you build up all this energy for this fight then you finaly realy get into it and you realise "wait, this is my beluved, we both already know the ansers" and the argument is over in a second of simple convorsation and you're siting ther with all this energy built up and your head is realing with the realisation that this thing that seemed so earth shatering tow seconds ago just disolved into nothing in front of your eyes the second that this wondefull creature was in your armes.....
anyways thats what i remember or it, it was a long time ago the last time it hapened. hope that helps you understand the sycoligy involved. thers more to it, but i'd have troublew sumerising it, let me know if it's somthing you're interested in reading me ramble on about :) lol. -
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Re: Summary Results of Asperger's and Sexuality Survey
Wed, April 2, 2008 - 12:22 PMUmmm,thanks stars....(blushs theoreticaly).
and off topic...I also love adult swim and Stranger In A Strange Land....so I grak.
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Re: Summary Results of Asperger's and Sexuality Survey
Thu, January 17, 2008 - 1:15 PM>>> 9. Known or possible Asperger's Syndrome only: Have you ever had a problem with bullies? If so, where?
Doesn't that eliminate the ability to compare the answers of aspies against the answers of nt's? That may not have been an objective of the survey, it just seems like it might be something people might like to know. I remember noir saying the other day that aspie kids are about 20x more likely to be bullied in K-12. That being the case, then the NT responses would show very small numbers for that field compared to the big spike in K-12 for aspies.
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Re: Summary Results of Asperger's and Sexuality Survey
Thu, January 17, 2008 - 12:42 PMSeems like the gender question should be divided. What is your biological gender? What is your gender identity? That would offer folks the opportunity also to select androgyne and still be counted amongst male, female or intersexed for biological gender. As is currently, if you say "other" for androgyne, the odds are that you happen to be biologically male or female, but that's not reflected in the results.
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Re: Summary Results of Asperger's and Sexuality Survey
Wed, March 26, 2008 - 6:45 PMI did not take the survey(not around)but thought I would mention that if I answered this when I was 12 or 20 or 30 or 44(present)my answers would be very different....I change,my sexuality and self perceptions have changed. When I was DXed the therepist used this approach.....
"Theoretical aspie trait such as stimming...."
do you do this now or have you done this in the past.
It's not easy to answer questions like this(trying to remember backk to who I was as a kid)but I do think it more accurately represents whatever is being measured.
EX.regaurding my gender idenitity and sexuality...
When I was 5 until around 12? I felt like I was a boy born into a female body.I hated ALL girl things,liked climbing trees,collecting rocks,arrowheads and bugs....I thought girls were not very bright.In other words....I was basing my gender identity on stereo=-types that my mother installed in me about what was appropriate.
When I became old enough to reaize that boys also liked to talk about sports and cars which bored the hell out of me...I thought perhaps I wasn't a guy after all.
As soon as I learned the term androgeny....my gender identity became much more clear to me.I wasn't a girl or a boy...I was a person who had some stereptypical traits of both.
I was boy crazy as young as I can remember(did I want to kiss one or be one???)I also thought females were attractive and some where even interesting.I thought I must be a lesbian. Then I eventually had sex with some women and realized it was not very exciting.There seemed to be something missing.It wasn't bad,it was just more comforting then interesting...no spark.Ooops,guess I'm not a lesbian or even bi....I didnt realize that until I was 27 and had some experience.I learned that for me,I could still "get crushes" on females and not act them out pysically because I was living with the idea that sex was the end result of love....bit confused?
I thought I was a "sex addict" and perhaps I was....but as soon as I stopped drinking I found sex less interesting and a little over stimulating sometimes.
Until I was 40,I would have told you that the idea of a "vaginal orgasm or a G-spot " was a patriarcal conspiricy...until my BF found mine(maybe you grow one at 39?I dont really know but I'm pretty sure someone was in that general area before and no tiggers were being tripped until now.
Point being.....We change.AS or NT,our sexuality and gender identities are not stagnet and a test that does not take this into account is not going to reflect "reality". -
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Re: Summary Results of Asperger's and Sexuality Survey
Thu, April 10, 2008 - 7:21 PMWell studies, statistics, tests, etc. don't generally reflect "reality" per se... the data is what it is... it requires a lot of connecting the dots to make anything meaningful out of them, but even then, there's an 80% failure rate in R&D. So only about 1-in-5 R&D projects actually become valuable in the long-term and I tend to think we should treat statistics and studies that way in general. There are some good "nuggets" of truth to be had in there, but they're almost always "in the rough".
But speaking of sexual identity changing, I remember seeing a longitudinal study recently of "bisexuality in women" (and I really wish it had been a study of "bisexuality in humans") where the researcher(s) ultimately said after the study that "bisexuality isn't just a phase" in women. I don't remember how large the sample size was, but they followed a bunch of women over the course of many years, taking the survey data every 2 years. In the course of that time there were women who changed their answers regarding sexual preference, moving from lesbian to bi to hetero or in the other direction. If I remember correctly, the least amount of movement was from bi to hetero, but the most movement was from lesbian to bi. I could be misremembering that... but in general there weren't huge amounts of movement in any direction, just small gradual shifts.
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